Last week we found ourselves climbing over the mountains and heading towards Baltimore yet again.
It was time for Katya to have a CT scan and to see a handful of her Doctors.
I have processed our appointment last week for Katya at JHH enough that I'm ready to share a prayer request.
We need specific prayers for bone growth for her. In spite of all the many things we have done to try to get her bones to grow thicker again, they have not. Her skull is still half as thick as the average person's skull. This is risky for her and just not a good thing.
It was frankly disheartening to have tried so hard the last year plus to encourage bone growth through diet and Doctor suggested supplements only to be told it had not changed appreciably since her last CT scan. UGH.
Her Doctors were not happy. We were not happy.
Please pray for bone growth as well as protection in the meantime for Katya's brain and for no injuries to her head! Also pray for bone growth in general for her. The Doctor's said her overall bone structure is very petite (no surprise, we knew that). She needs her bones to grow thicker so it's easier and safer to patch the empty areas of her skull. (Yes, we have gotten a second opinion about this, and yes, it is strongly recommended that we get it done due to how large the holes in her skull are, leaving her brain at risk in those areas.)
In better news, the Doctor's were impressed with how much progress Katya had made since her last visit in early December, and were happy for so many good reports from school. Her plastic surgeon enjoyed seeing the video of her participating in her school program--I wish I could share it here but since it has other kids from her school in it, I won't be sharing it publicly.
Thank you for praying for Katya. We really appreciate it.