"We are going to focus on LIFE for Katya. I believe, one day, she will amaze the world."

Dr. Ben Carson on Katya Dueck

Monday, January 6, 2014

Still on Break--And a Trip to the Science Center

Katya's last day of school was December 20th. Believe it or not, she is still on "break" as of today,  January 6th! And she will still be on break tomorrow, January 7th! She was supposed to start back to school on January 2, but one spat of bad weather after another has kept her home. Right now wind chill factors are so cold the school can not in good conscience have school, so there goes more days cancelled. We are currently at a temperature of -4 degrees. Add in the wind yet, and it's quite chilly.

We are having trouble keeping Katya warm enough in spite of many layers of clothing--her still very slender body just has a hard time holding the heat. Thankfully Katya does not get nearly as cold, nearly as soon, as she used to, or we would really be in a pickle.

I'm very thankful that we were able to get private OT/PT and Speech services lined up for Katya before the start of this long Christmas/bad weather break because that means Katya is continuing to have services in those areas even with school out. For that, we are really grateful! We are especially excited because Katya has shown a huge increase in what she seems to be able to mimic, as well as her self-motivated "babbling". We are really excited and hopeful about what this might mean for Katya's future!

During this very long break, we have been trying to find things to do to keep Katya busy. Last week Paul took the kiddos to the Science Center.

While Charity was trying to show Katya the photos she had taken of her, Paul captured this shot.

Photo

Chad and Katya both loved the special Curious George display! Curious George was the very first video that Katya showed any real interest in when she came home, so it was neat she go to go to the display.


Chad had quite a lot of fun in the space ship--Katya thought it was better to just enjoy watching Chad in it than to go in herself!
 

The most IMPRESSIVE THING about Katya at the Science Center was an event Charity told me about. I asked her to share it here. "Katya had come up behind a very little girl "talking" on a telephone. Katya stood behind her and waited, and eventually signed "my turn". When the little girl eventually handed the phone to her, Katya held it up to her ear for a moment, and then pressed it into a little boy's hand, while signing "your turn"."

This was EXCITING news because Katya did that totally unprompted! Taking turns and sharing was not anything she had any concept of before she was with us. I love seeing how the careful teaching and training that is being poured into her at school, at therapy, and at home is starting to take root. Yes, it's taking time, yes, it's taking patience, and Katya is a long way from consistently practicing things like this, but even seeing that she CAN is huge, and gives us much hope for our girlie!

Kristina enjoyed something she had long wished to do, and never been able to do before--ride the Unicycle! She was finally tall enough!


 And away she goes!



She was quite happy with her experience when it was done!

Chad was shyly pleased to dress up and play a doorman.

 
Of all the activities, it seemed Katya's most favorite was the water sprayers!



So was the trip out perfect?? No, but actually, it went pretty good clear up until Charity took Katya to the bathroom right before they left the Science Center. And then things went DOWN HILL rapidly. And Charity finally had to escort Katya out for Paul to take to the van to sit while the rest got a small treat to bring out to the van to enjoy for their exemplary behavior. Katya is a smart kiddo. Knowing how this has worked in the past, she will be much wiser about her choices in the future for a while. Then she will "test the boundaries" again to make sure they are the same as they were before.

Katya is making progress, and with love and patience she will continue to grow in all areas, I have no doubt. We are very thankful for the progress we do see, even though she still has many, many challenging behaviors at times. Love our girlie and are thankful she is with us.

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