"We are going to focus on LIFE for Katya. I believe, one day, she will amaze the world."

Dr. Ben Carson on Katya Dueck

Wednesday, June 12, 2013

Ugh. Double Ugh.

Yesterday, we got a letter that the NueroPysch Dr. that had evaluated Katya for us back in the fall is leaving and going to the University of Michigan Health System.

Smack. What a blow. She was the one medical professional who seemed to be able to really GET Katya, and actually had suggestions for us beyond the usual "you are doing all the right things. Keep up the good work!" It's very nice to be told that, but it's sure not very HELPFUL for making progress with Katya.

Today, as if we needed more "Debbie Downer" news, we got the official notice from Dr. Carson that he is retiring and that we need to find a new Doctor for Katya. Ugh. We knew this was coming, but man, it stinks to get that letter on the heels of the one yesterday!!

Lego Clip Art

On top of all that, we have some crazy other stuff going on . . . So I'm hoping for an early bedtime for everyone--Mom included. It has been very hard to get enough sleep for various reasons since school got out and it's taking it's toll on this Mommy. Let's hope that the tornado watch our whole entire area is under tonight till midnight does not mess up my best laid plans.



3 comments:

Anonymous said...

I hope that Dr. Carson can recommend a new doctor for you! And I hope that the other doctor can do the same. Would it be possible for you to contact her, describe how you felt that she "saw" Katya, and ask her to please recommend someone for you? /Milena

Hope Anne said...

Milena, Dr Carson has already referred us to his associate, Dr, Ahn. Dr. Dorafshar also suggested Dr Ahn, as he has done many surgeries with him also, and feels he would do a good job with Katya's needs. We are told by other parents that he doesn't have the great bedside manner that Dr. Carson does, but that Dr. Ahn is extremely talented and very knowledgeable, so I think Katya will be in good hands with him.

As to the NueroPysch Dr, we hope that Katya can be seen by her in Michigan, where she is going, perhaps. We will have to find out . . .

Thanks for always being supportive of Katya!

Anonymous said...

Such a relief! If Katya doesn't have to see her Neuro Psych very often I guess you could as well go to Michigan as anywhere else (here is where I show that I lack all knowledge about distances in the US...).
From what you tell, it seems like Katya will be in good hands with Dr. Ahn. Although nice bedside manners are always pleasant, maybe since Katya feels safer with you now, it's maybe of a lesser importance than before.
Thank you for your kind words!

(funny what words I get to type to prove I'm not a robot. Here I got to type the word trial and on the post where Kaya talks I got clearness! )
/Milena