Saturday, March 24, 2012
Long Overdue Update
After Katya being under General Anethesia for almost 12 hours on Wed, starting around 7:30 AM, we were finally informed around 7:30 by Dr. Dorafshar that she was out of surgery and had done "amazingly well" in how she tolerated all the blood loss, meds etc. He further told us that he had been able to get done all that he had set out to do, which was very good news indeed! That meant that among other important things, her eyes should be now lined up which will improve her ability to see nicely just a bit. The Drs. were very pleased, in spit of their exhaustion, and Dr. D's pleasure showed greatly when he further infomred me that he'd been able to do Katya's surgery without shaving or cutting a single one of her little blond hairs!!! There's a long back story behind that but for now, just know that if there is a patient sensitivity award or recognition that Johns Hopkins has, Dr. D. totally should be given one! He went way, way out out of his comfort zone to do that for Katya to try to help her emotionally. I would HIGHLY recommend Dr. D. to any parents who need a top notch plastics guy. Tell him that Katya's Mom sent you. ;-) (Yeah, there is a story behind that too but I don't have time or energy to type all of these stories!)
Initially Katya was progressing rapidly in her recovery. She was doing sooo well that they hoped she could be discharged from the hospital today. However, a number of things collided together to not only impact Katya horribly on a very deep emotional level, but that in turns seemed to set off a cascade of issues that impacted her forward progress physically.
Even though she was moved from PICU to a regular floor THURSDAY afternoon--which speed Dr. Carson told us was almost unheard of after the ordeal she'd been through the day before, her progress on the regular floor has been very slow. But thanks to the help of the top-notch nurses around here, who are thinking outside of the box, being super patient and sensitive, and advocating for Katya in every way they can, I have hopes that we may have turned a corner now as of Sat. evening and be headed the right direction. Time will tell.
In the meantime, know that we deeply appreciate all your prayers and supportive comments . . . Dr. Carson told us that he truly believes it was the prayers of everyone that enabled Katya's surgery to be a sucess. He truly had deep concerns about whether or not she would make it through alive.
He is very hopeful that once she is healed, her life will be so much better quality for her in terms of pain--he doubts she ever had many, if any, pain-free days in her little life . . . .
Katya's story is impacting everyone that comes in contact with her around here it seems. We see it in the tenderness in the eyes, and some of them in the way they say, "Thank you for what you have done. It's a good thing." I saw a qoute on the wall while walking out of here once that said something like this: "He who saves one life is considered to have saved the whole world." I believe it was a qoute of someone who was Jewish, and in fact, reminds me very much of the Scripture verse that says something about one soul being worth more than the whole world.
So, yes, we helped save Katya's life, but honestly, we couldn't have done it alone. There have been many, many people involved over the last couple of years--people who prayed for Katya to find a family, people who gave, people who prayed for us, and on and on. And even now we deeply need the prayers and support of her friends and fans who are loving her and praying for her and for us!!! We are grateful for the Aaron's and Hurs who love Katya and are holding up our arms as we help fight for her and her future. I don't know what God's plans are for her life, but I have NO DOUBT that after the strong battles we have seen and felt, that it's a good plan, and a good future. As Dr. Carson said the day he first met her, "I believe some day she will amaze the world." Yeah, she's been doing that already!!! Our little Ukranian Princessa . . . amazing some of the world's greatest Doctors . . .