"We are going to focus on LIFE for Katya. I believe, one day, she will amaze the world."

Dr. Ben Carson on Katya Dueck

Monday, September 26, 2011

Strep has Struck

Poor Miss Katya is very sick with what turned out to be strep throat . . . we spent a good chunk of time in the ER tonight after spending a long day at the specialist. (4 hours *IN* the Drs office plus lots of travel time!)

Please keep praying for Katya and for us . . .  I will try to post more when I can think more coherently but I did want to let you know that the Nuero Opthamologist did not see any swelling of the Optic Nerve that would indicate Inter-Cranial Pressure (or ICP). He admitted that just because he didn't see any thing today doesn't mean much except that today there isn't any ICP. He wants to continue to "closely follow" Katya with repeated check-ups to monitor it "as this is an evolving situation". I honestly was glad that he seemed to understand that particular aspect very well! Maybe better than some other people are understanding it.

In the meantime, Dr. K. is  referring Katya for two more appointments at two different places (with then a follow-up with him again after them--so three new appointments) to try to determine what level of vision Katya does have and whether or not she needs glasses. Since Katya can not talk, it sounds like the appointments are a bit more of a hassle than a typical screening/exam would be for a child with speech.

And of course . . . because something just has to happen to keep our life from being dull . . . while sitting there with Katya listless and racked with fever in my arms, the fire alarm went off and everyone had to evacuate the building  . . . so down and down and down the stairs from the 5th floor I had to try to go with a very sick and miserable little Miss Katya and out into the windy and drippy parking lot till the fire men all arrived and checked the building out and gave it the all-clear . . .  Just thankful that after all that hassle, we did finally get seen by the Dr. even if it was 5:30 before we could get out of the office when her appointment for this was at 1:45 . . .

I'm also very grateful for my friend, Marian, going with me to to be our driver,  keep my sanity and be my "camel" lugging my bag and our water bottles so I could carry Katya! May she NOT get strep and may she and her household be blessed because they were willing to show this kindness to Katya and us!


Hevel said...

I am glad yo finally got the appointment and things are being done for Katya.

I hope she feels better soon and no one else gets it from her!

Sylvia MiaSara Truewell said...

Aw, I'm so sorry to hear that Katya is sick! That's awful. I hope she's feeling better soon!

I love that you replaced the blog header photo! What a cute photo!
Do her eyes cross a little bit, or is it just the camera angle? (My worry is that this can occur as a result of intercranial pressure.) Is that what you're investigating with the vision specialist? Or is it more of a checkup to see where she's at in terms of vision?

I had a second question for you, when you get a moment...
You said the doctor didn't see any sign of intercranial pressure. If that's true, then does that mean that there's no real explanation for Katya's gait problems? Do we know what's causing those issues or is that still to be determined?

I hope you all stay healthy and I hope little Katya is feeling better soon! I look forward to your updates once things settle a bit more! I can't wait to learn more about Katya's life with you all! :-)